Navigating a chronic disease, especially a rare one, can be difficult, as there are often many choices that must be made when it comes to treatments, therapy options, medical guidance, education and more. But thanks to funding provided by Community Health Charities of Nebraska (CHC-NE) donors, families can receive crucial support from a care center that specifically works with their condition, giving them access to support in a variety of areas and helping them make decisions.
Life changes forever for a family who’s been hit with the diagnosis of a chronic health condition. And for some families in Nebraska, that same diagnosis may mean that adaptations and specialized equipment are required moving forward. This equipment can be expensive, and families don’t always have access to insurance or other financial assistance to help offset the costs. Fortunately, several of Community Health Charities of Nebraska’s (CHC-NE) 22 member charities offer equipment loan programs to make sure that families have access to this valuable support.
Did you know that military veterans are more likely to be diagnosed with ALS? Because of dollars given to the ALS Association Mid-America Chapter through Community Health Charities of Nebraska, veterans who have been diagnosed with ALS and their families have access to the support they need. Here’s how.
The FDA just approved the first drug in 22 years to treat ALS — the second treatment ever for the disease. Edaravone (brand name Radicava) is an antioxidant drug thought to preserve motor neurons in people with ALS, allowing the nerves to keep their muscles working for a longer period of time.